formerly, The Evergreen Spina Bifida Association
Treasurer : Jonathan A. Tutt email@example.com 509-868-1485 Jon’s background is business. After graduating from the University of Washington and four years in the US Army, Jon spent 17 years as a branch manager in the consumer finance industry, then 10 years as a mortgage broker and since 1996 as a property manager. In September 1998, his grandson, Michael Hoyt was born with Spina Bifida., and that’s why he became involved with the SBAWS: To hopefully improve Michael’s life and to help him be all that he can be. Term ends 12/31/19
Dave Carl is originally from the east coast. He received a bachelors degree in social work from Buffalo State College, in Buffalo, New York in 1999. He has been involved with Spina Bifida chapters throughout the country. In 1999 he assisted with planning the community events for the Spina Bifida Association of Western New York. From 2001 until 2006 he was the Treasurer for the Spina Bifida Association of the Upper Peninsula of Michigan.
Since moving to Richland, Washington in 2007 he has been an active member in his community serving on several committees advocating for individuals with disabilities helping them to live independent. Dave is also a motivational speaker, writer and blogger. Using his personal experiences he teaches people how to overcome obstacles in life. In 2010 Dave wrote a children's adventure book called "Super Cyclist" about a superhero who uses a hand cycle to protect people. He uses the book to teach children to believe in themselves. He has a blog called which has a variety of stories about his personal and professional experiences with independent living. Dave has also written an article for NAMI (National Alliance on Mental Illness) called "Workplace Communication Tips for People Living with Mental Illness" and an article for Exceptional Parent called "Transitioning Into Residential Living: Independent Living At a Whole New Level".
Dave is also very strong believer in volunteering. In 2010 he received a GOLDEN HEART AWARD for outstanding volunteer from the Benton Franklin Volunteer Center. Dave can be reached at or through his website .. His current term on the board ends on 12/31/2019
Amy Shiel: Vice-President firstname.lastname@example.org She wrote: I am the mother to four beautiful children, Tristram, Ariel, Balin and Kelahna. Kelahna is our youngest and she was born with Spina Bifida, Hydrocephalus, and Arnold Chiari Malformation. She is such a blessing to our family and we are so proud of her for all that she has overcome. I have a Bachelors degree in Psychology and have been working in criminal justice for the past seven years. Prior to working in criminal justice I was a counselor for dual diagnosed developmentally delayed adults. I am actively involved in the Boy Scouts of America and have been a den leader for eight years. Her current term ends 12/31/2020
Tim Miller email@example.com Term ends 12/31/2020 Tim wrote:
My wife and I have five wonderful children. Tristram 16, Ariel 15, Balin, 11, Kelahna 8, and Percival 1. Kelahana was born with Spina Bifida, Hydrocephalus, and Arnold Chiari Malformation. Kelahna is an amazing little girl with strength and determination that inspires me every day. I completed my Bachelors degree in dental hygiene in 2002 and my Doctorate in Dental Surgery in 2014. I am actively involved in the Boy Scouts of America and enjoy doing community outreach providing free dental care to those in need. I just recently participated in RAM (Remote Area Medical). In my free time I enjoy spending time with my family.
Celeste McCormick, President firstname.lastname@example.org Term Ends 12/31/19
Celeste has been involved with SBAWS for over a decade, serving many years as the Newsletter Editor. She first joined the organization to help support her nephew Michael, who was born with Spina Bifida and is now 17 years old. "Throughout my involvement with SBAWS, this organization and its members become a source of inspiration and encouragement for Michael and all of us who love him. SBAWS has taught us so much and been an instrumental part of Michael's successful development, so it is important to me to participate in the organization and keep it going strong." Celeste works at Lewis-Clark State College as an IT manager and has an associate's degree in Web Development, bachelor's degrees in History and English Literature, and a master's degree in Public Administration.
Erica Nunez, Media Coordinator may be reached at email@example.com. Erica resides in Benton County and is the mother to one child who also has Spina Bifida. Her experience with children started in 1999 and range from coordinating events for orphanages in Korea, assisting in a children’s homes in Austin, TX, and being a teacher’s aide tutoring students with disabilities in college and in kindergarten. She has a certification as a Medical Assistant from Kaplan College, an Associate of Arts and Science degree from Columbia Basin College, and a Bachelor’s in Business Administration degree from American Inter Continental University. She served in the United States Air Force as an Engineering Technician (EA). She also spent many years working with the United States Postal Service. Now that she is a mother she still has a passion to see the world and plans to take her new blessing in life, Adam, along for the ride. Term ends 12/31/2019
Lacey Winslow, Newsletter Editor 425.780.1163, My fiancé and I have two boys together Robert and Wyatt. Summer 2017 I found out I was born with Spina Bifida Occulta . With much reading about my newly found birth defect, I found little information. Learning there is minimal treatment, I decided I wanted to get involved. In the hopes to learn, spread awareness, and find a treatment. Term ends 12/31/2019
Sarah Gammons-Reese, Past-President 360-820-2473 firstname.lastname@example.org
Sarah resides in Whatcom County and is the wife of a wonderful man named Robert.
Sarah is Mom to 15 wonderful children ages 4-29 and is also a grandmother to three
adorable children. She has 25 years experience in working with children with various
disabilities. Sarah has two children with Spina Bifida; Jude age 7 and Angelina age
10. Sarah has a BS in Therapeutic Recreation from Kent State University. She is a
CASA volunteer and works as a Guardian Ad Litem for children in foster care and family
court. Sarah was co-director of the Medical Advocacy Team for several years which
helped children with unmet medical needs in underdeveloped nations. Child advocacy,
travel, adoption and of course- her family-are her passion. Term ends 12/31/2019
Nicole Williamson email@example.com Seattle Co-leader: 303-877-5083 Nicole has been co-leading the Seattle group since 2006. She, along with Jason Lane, plan 2 large events each year in Seattle, including the Holiday Party in December and the Summer Picnic for 75-150 guests. She also plans bi-monthly play dates and Parents Day/Night Out (switching from one to the other month after month), and an annual trip to the Pumpkin Patch in October. Before her involvement with SBAWS, she was active with the Spina Bifida Assoc of Colorado where she also managed the Adopt-a-Ghost program and planned group activities for school age children with Spina Bifida. Nicole was appointed by the board to be the groups Executive Director effective April 1, 2018
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