People living with Spina Bifida often have many obstacles to deal with. Hydrocephalus and latex allergies are common among many. Folic acid intake has been shown to help reduce the incidence rate of Spina Bifida For more information on these subjects try out these links.

Direct Aid Reimbursement

SB Parents ListServ This is a contact service for parents of children with Spina Bifida to exchange ideas, resources, debate and have some great discussions.

The national Spina Bifida Association

Disaster Preparedness Links

  1. Preparation Checklist
  2. Ready FEMA Government
  3. Emergency Preparedness Guidebook


   * Hydrocephalus Association

   * Hydrocephalus Foundation, Inc.

Latex Allergy:

   * American Latex Allergy Association

   * Latex Allergy Links

Online Excercise Class


Children's Hospital and Regional Medical Center

Neurodevelopmental & Birth Defects Clinics

4800 Sandpoint Way NE

Seattle, WA 98105

Phone: 206-987-2184

Web site:


Children’s Hospital of Philadelphia’s web site at

Spina Bifida Treatment

- Addresses both prenatal and postnatal repair considerations

- Outlines the findings of the MOMS (Management of Myelomeningocele) Study, which looks at treatment in utero

Eligibility Guidelines for Fetal Surgery for Myelomeningocele

Fetal Surgery for Spina Bifida Video Series

- Explores Spina Bifida diagnosis, treatment options, delivery and follow-up care

The Future of Hydrocephalus Treatment

Gravitational and Self Adjusting Shunt Valves Revolution

The Spina Bifida Genetics Research Project: Phase II

Youth Outdoors Unlimited  

ASK Line (Answers for Special Kids)

Phone: 1-800-322-2588

Center for Children with Special Needs at Children's Hospital

Centers for Disease Control and Prevention

The ARC of Washington State

Parent to Parent South Puget Sound Chapter


Prime Time (a Camp for Special Families)

Healthy Mothers, Healthy Babies

Adolescent Health Transition Project

Washington State Fathers Network

National Information Center for Children and Youth with Disabilities (NICHCY)

Family Village

Exceptional Parent Magazine

Parent Help 123

Lifestyle Accelerator


Rock and Roll Cycles

Website for College Students with Disabilities

American Latex Allergy Association

Home. About Us. Contact Us. Spina Bifida. Administration. Folic Acid.

formerly, The Evergreen Spina Bifida Association

“A new product that will make the activities of daily living much easier and safer for wheelchair users.”

Camp Korey is a non-profit organization , which provides camping programs to children living with chronic or life-threatening medical conditions free of charge. We are located in Carnation, Washington and our campers are children between the ages of 7-17, who are living with illnesses such as skeletal dysplasia, metabolic disorders, cranio-facial differences, organ transplants, and other blood-borne illnesses. Our camping programs offer these children an opportunity to participate in activities like arts and crafts, swimming, horseback riding, team building, and more with the goal of allowing them to simply let loose, have fun, and BE KIDS.

Folic Acid Council of Ontario
A Canadian based website dedicated to increase awareness about the benefits of folic acid and folate for pregnant mothers around the world

Spina Bifida & Hydrocephalus Association of Ontario  Provides a range of services and support for parents, families, youth and adults with Spina Bifida & Hydrocephalus.

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Resources for Students with Disabilities

ADHD student’s study guide tips

Going to College with Asperger’s and Autism

Resource for Students with Dyslexia

Students with Cerebal Palsy

Tools for Students with Down Syndrome

The Fully Accessible Guide to Home

Loans for People with Disabilities

by Barry Bridges

Updated on 01.16.18

   Consumer Advocacy

Money Geek Online Financial Resources

Independent Living: Resources and Funding Strategies for Making Homes Accessible  

A Guide on How to Get Scholarships and Grants for Students with Disabilities

From Vehicle Modifications to Car Insurance: Helping Everyone from Students to Seniors Navigate Driving With a Disability