Spina Bifida Association

of Washington State

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formerly, the Evergreen Spina Bifida Association

Participants Needed:  Online Research Study

Do you have a child (ages 10 - 29) with Spina Bifida? If so, researchers
from Kennedy Krieger Institute invite you to participate in an online
research study! We are interested in learning more about how and when
children with Spina Bifida learn to manage their medical self-care and
home responsibilities. The study does not require a clinic visit and can
be completed using a computer in your home or elsewhere. The online
survey usually takes about 15-20 minutes to complete and is anonymous,
so no personal information such as names, social security numbers, or IP
(computer) addresses will be collected. Please be aware that if your
child is over the age of 18, we will ask you to obtain your child's
consent. If you have questions about this study, Dr. Zabel can be
reached at


If you are interested in participating in this study, we invite you to
go to
www.psychdata.com and enter survey # 128186. We thank you very
much for being willing to help us and other individuals with Spina
Bifida by participating in this study!

Robin Austin
Communications Specialist
Spina Bifida Association
4590 MacArthur Blvd. NW
Suite 250
Washington, DC 20007
202-944-3285 ext. 29
800-621-3141 ext. 29
Fax: 202-944-3295