Events

Board Meetings
Walk-N-Roll
Spina Bifida Summit
Holiday Party

Together, we make the difference!

To improve the lives of people affected with disabilities by…
Offering public awareness and advocacy around Spina Bifida…
Gathering to lend our experience and energy to others in need…
Equalizing opportunities for those at all levels of ability…
Teaching our youth to advocate for themselves…
Helping inspire empathy & understanding of disabilities…
Educating the importance of prenatal folates to prevent Spina Bifida…
Reaching out to assist individuals and families affected by Spina Bifida…

Dedicated to Awareness

There are many ways you can support the SBAWS:
• Volunteer for Programs & Events
• Start a Walk-N-Roll for Spina Bifida Team
• Sponsor an Event or Program
• Become a Corporate Partner
• Join our Board of Directors
• Make a Donation!
A donation of any size would help us reach out to those affected by Spina Bifida.


Our Mission

The Spina Bifida Advocates of Washington State (SBAWS) is here to advocate for everyone in the state of WA affected by Spina Bifida by providing support, events, outreach, and public awareness.

Our Vision

The SBAWS envisions a world in which people born with Spina Bifida experience rich and personally fulfilling lives, and their individual choices are not influenced by Spina Bifida. They thrive in a barrier-free world that offers ready access to an array of effective treatment options and uniformly excellent medical care. As professed in our motto, “Together We Make the Difference,” we will foster effective collaboration between our communities, medical professionals, and all those affected by Spina Bifida.

Why?

Because every person born with Spina Bifida should have equal opportunity to live life being included and involved with their peers while also being embraced by a community of people who understand and empathize with the unique challenges of living a lifetime with a permanently disabling birth defect. Most important of all, we recognize that our kids are tomorrows leaders, we want to instill strong leadership traits in them to benefit their future.

About Us

We offer emotional support for everyone affected by Spina Bifida, including meetings at numerous local “Cluster” support groups throughout the state.

Our newsletter “The Evergreen” details local SBAWS activities, provides news on medical, therapeutic, rehabilitative advances, recreational and legislative issues.

Our website here and our toll free contact number: 1-888-289-3702.

Social events for children, teens and adults to gather, have fun and share their life experiences.

New Parents Packets to help parents learn about Spina Bifida and to help manage their child’s health care needs.

Educational scholarships may be awarded for educational purposes.

Access to national’s “Insights” magazine and to other current information on Spina Bifida.

A limited “Equipment Fund” to assist people with mobility devices, medical supplies and other necessary items not covered by insurance, as well as computer purchases.

About Spina Bifida

The effects of Spina Bifida are different for every person. Up to 90% of children with the most severe form of Spina Bifida have hydrocephalus (excess fluid on the brain) and must have surgery to insert a “shunt” that reduces the pressure on the brain and helps drain the fluid. The shunt stays in place for the lifetime of the person. Other conditions can include full/partial paralysis, bladder and bowel control difficulties, learning disabilities such as attention deficit hyperactivity disorder (A.D.H.D.) and hand-eye coordination, depression, latex allergy and social and sexual issues.

Resources

You can find all our available online resources including links to other sites with up to date and helpful information by clicking the Information Symbol above.