About Us
What we offer:
Emotional support for everyone affected by Spina Bifida, including meetings at numerous local cluster support groups throughout the state.
The Evergreen newsletter, which details local SBAWS activities, provides news on medical, therapeutic, rehabilitative advances, recreational and legislative issues.
Our website here and our toll-free contact number: 1-888-289-3702
Social events for children, teens and adults to gather, have fun and share their life experiences.
New Parents Packets to help parents learn about Spina Bifida and to help manage their child’s health care needs.
Educational scholarships may be awarded for educational purposes.
Access to national’s Insights magazine and to other current information on Spina Bifida.
A limited equipment fund to assist people with mobility devices, medical supplies and other necessary items not covered by insurance, as well as computer purchases.
Our Directors
Daniel Bourland
I’m 45yrs old. I was born with Spina Bifida. I am here to help people with Spina Bifida learn to live better lives. I am still trying to figure things out, but now I know I’m not alone.
Read MoreTim Miller
My wife and I have 5 wonderful children. Tristram, Ariel, Balin, Kelahna, and Percival. Kelahana was born with Spina Bifida, Hydrocephalus, and Arnold Chiari Malformation. Kelahna is an amazing little girl with strength and determination that inspires me every day....
Read MoreRachel Bernhard
I grew up in Ames, Iowa where I participated in Spina Bifida Association of Iowa (SBAI) events in support of my niece born with Spina Bifida, Emmie. I graduated from Iowa State University in Biological Systems Engineering and Global Resource...
Read MoreWhitney Stohr, Newsletter Editor
I joined the SBAWS Board of Directors in January 2020. I bring to the board a strong background in communications, outreach and advocacy. I hold a bachelor’s degree in political science, a law degree, and master’s degrees in ecology and...
Read MoreErica Nunez, Secretary
I reside in Benton County and I am the mother to one child who also has Spina Bifida. My experience with children started in 1999 and ranges from coordinating events for orphanages in Korea, assisting in a children’s homes in...
Read MoreAmy Miller, Vice President
I am the mother to 4 beautiful children, Tristram, Ariel,...
Read MoreCeleste McCormick, Past President
I have been involved with SBAWS since 2005, and served...
Read MoreRuth Hayes-Short, President
I have spent 40+ years in a variety of educational...
Read MoreOur Volunteers
Chris Pitts,
I’m in my 30s and I have Spina Bifida. I have been working with computers for well over a decade now and have more recently started working with webpages. In 2019 I decided to volunteer for the SBAWS and help...
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