What we offer:
Emotional support for everyone affected by Spina Bifida, including meetings at numerous local cluster support groups throughout the state.
The Evergreen newsletter, which details local SBAWS activities, provides news on medical, therapeutic, rehabilitative advances, recreational and legislative issues.
Social events for children, teens and adults to gather, have fun and share their life experiences.
New Parents Packets to help parents learn about Spina Bifida and to help manage their child’s health care needs.
Educational scholarships may be awarded for educational purposes.
Access to national’s Insights magazine and to other current information on Spina Bifida.
A limited equipment fund to assist people with mobility devices, medical supplies and other necessary items not covered by insurance, as well as computer purchases.
I am the mother to 4 beautiful children, Tristram, Ariel, Balin and Kelahna. Kelahna is our youngest and she was born with spina bifida, hydrocephalus, and Arnold Chiari Malformation. Kelahna … Amy Miller, Vice President Read More »Read More
I am originally from the east coast. I received a bachelors degree in social work from Buffalo State College, in Buffalo, New York in 1999. I have been involved with … Dave Carl, Director Read More »Read More
I grew up in Ames, Iowa where I participated in Spina Bifida Association of Iowa (SBAI) events in support of my niece born with Spina Bifida, Emmie. I graduated from … Rachel Bernhard, Secretary Read More »Read More
My wife and I have 5 wonderful children. Tristram, Ariel, Balin, Kelahna, and Percival. Kelahana was born with Spina Bifida, Hydrocephalus, and Arnold Chiari Malformation. Kelahna is an amazing little … Tim Miller, Director Read More »Read More
I joined the SBAWS Board of Directors in January 2020. I bring to the board a strong background in communications, outreach and advocacy. I hold a bachelor’s degree in political … Whitney Stohr, Newsletter Editor Read More »Read More
I’m in my 30s and I have Spina Bifida. I have been working with computers for well over a decade now and have more recently started working with webpages. In … Chris Pitts, Director Read More »Read More