About Us

What we offer:

Emotional support for everyone affected by Spina Bifida, including meetings at numerous local cluster support groups throughout the state.

The Evergreen newsletter, which details local SBAWS activities, provides news on medical, therapeutic, rehabilitative advances, recreational and legislative issues.

Our website here and our toll-free contact number: 1-888-289-3702

Social events for children, teens and adults to gather, have fun and share their life experiences.

New Parents Packets to help parents learn about Spina Bifida and to help manage their child’s health care needs.

Educational scholarships may be awarded for educational purposes.

Access to national’s Insights magazine and to other current information on Spina Bifida.

A limited equipment fund to assist people with mobility devices, medical supplies and other necessary items not covered by insurance, as well as computer purchases.

Our Directors

Daniel Bourland

I’m 45yrs old. I was born with Spina Bifida. I am here to help people with Spina Bifida learn to live better lives. I am still trying to figure things out, but now I know I’m not alone.

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Tim Miller

My wife and I have 5 wonderful children. Tristram, Ariel, Balin, Kelahna, and Percival. Kelahana was born with Spina Bifida, Hydrocephalus, and Arnold Chiari Malformation. Kelahna is an amazing little girl with strength and determination that inspires me every day....

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Rachel Bernhard

I grew up in Ames, Iowa where I participated in Spina Bifida Association of Iowa (SBAI) events in support of my niece born with Spina Bifida, Emmie. I graduated from Iowa State University in Biological Systems Engineering and Global Resource...

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Dave Carl

I am originally from the east coast. I received a bachelors degree in social work from Buffalo State College, in Buffalo, New York in 1999. I have been involved with Spina Bifida chapters throughout the country. In 1999, I assisted...

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Whitney Stohr, Newsletter Editor

I joined the SBAWS Board of Directors in January 2020. I bring to the board a strong background in communications, outreach and advocacy. I hold a bachelor’s degree in political science, a law degree, and master’s degrees in ecology and...

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Erica Nunez, Secretary

I reside in Benton County and I am the mother to one child who also has Spina Bifida. My experience with children started in 1999 and ranges from coordinating events for orphanages in Korea, assisting in a children’s homes in...

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Our Volunteers

Chris Pitts,

I’m in my 30s and I have Spina Bifida. I have been working with computers for well over a decade now and have more recently started working with webpages. In 2019 I decided to volunteer for the SBAWS and help...

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Jon Tutt

Jon’s background is business. After graduating from the University of Washington and four years in the US Army, Jon spent 17 years as a branch manager in the consumer finance industry, then 10 years as a mortgage broker and since...

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