About Us

What we offer:

Emotional support for everyone affected by Spina Bifida, including meetings at numerous local cluster support groups throughout the state.

The Evergreen newsletter, which details local SBAWS activities, provides news on medical, therapeutic, rehabilitative advances, recreational and legislative issues.

Our website here and our toll-free contact number: 1-888-289-3702

Social events for children, teens and adults to gather, have fun and share their life experiences.

New Parents Packets to help parents learn about Spina Bifida and to help manage their child’s health care needs.

Educational scholarships may be awarded for educational purposes.

Access to national’s Insights magazine and to other current information on Spina Bifida.

A limited equipment fund to assist people with mobility devices, medical supplies and other necessary items not covered by insurance, as well as computer purchases.

Our Directors

Amy Miller, President

I am the mother to 4 beautiful children, Tristram, Ariel, Balin and Kelahna. Kelahna is our youngest and she was born with spina bifida, hydrocephalus, and Arnold Chiari Malformation. Kelahna […]

Bailey Gordon, Vice President

I wear many hats as a mom of 3 and photography business owner, but medical mom is my most complex role. Being an advocate for our young son has helped […]

Carol Lewis, Treasurer

I am a mom, grandma, & great grandma, an accountant, certified medical assistant, and own a construction & business management company. In 2008 I was blessed with the news of […]

Dave Carl, Director

I am originally from the east coast. I received a bachelors degree in social work from Buffalo State College, in Buffalo, New York in 1999. I have been involved with […]

Chris Pitts, Director

I’m in my 30s and I have Spina Bifida. I have been working with computers for well over a decade now and have more recently started working with webpages. In […]

Tim Miller, Director

My wife and I have 5 wonderful children. Tristram, Ariel, Balin, Kelahna, and Percival. Kelahana was born with Spina Bifida, Hydrocephalus, and Arnold Chiari Malformation. Kelahna is an amazing little […]

Our Volunteers

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