What we offer:
Emotional support for everyone affected by Spina Bifida, including meetings at numerous local cluster support groups throughout the state.
The Evergreen newsletter, which details local SBAWS activities, provides news on medical, therapeutic, rehabilitative advances, recreational and legislative issues.
Social events for children, teens and adults to gather, have fun and share their life experiences.
New Parents Packets to help parents learn about Spina Bifida and to help manage their child’s health care needs.
Educational scholarships may be awarded for educational purposes.
Access to national’s Insights magazine and to other current information on Spina Bifida.
A limited equipment fund to assist people with mobility devices, medical supplies and other necessary items not covered by insurance, as well as computer purchases.
I am the mother to 4 beautiful children, Tristram, Ariel, Balin and Kelahna. Kelahna is our youngest and she was born with spina bifida, hydrocephalus, and Arnold Chiari Malformation. Kelahna is such a blessing to our family and we are...Read More
I am originally from the east coast. I received a bachelors degree in social work from Buffalo State College, in Buffalo, New York in 1999. I have been involved with Spina Bifida chapters throughout the country. In 1999, I assisted...Read More
I grew up in Ames, Iowa where I participated in Spina Bifida Association of Iowa (SBAI) events in support of my niece born with Spina Bifida, Emmie. I graduated from Iowa State University in Biological Systems Engineering and Global Resource...Read More
My wife and I have 5 wonderful children. Tristram, Ariel, Balin, Kelahna, and Percival. Kelahana was born with Spina Bifida, Hydrocephalus, and Arnold Chiari Malformation. Kelahna is an amazing little girl with strength and determination that inspires me every day....Read More
I joined the SBAWS Board of Directors in January 2020. I bring to the board a strong background in communications, outreach and advocacy. I hold a bachelor’s degree in political science, a law degree, and master’s degrees in ecology and...Read More
I’m in my 30s and I have Spina Bifida. I have been working with computers for well over a decade now and have more recently started working with webpages. In 2019 I decided to volunteer for the SBAWS and help...Read More
My name is Tristram Miller. My younger sister was born with spina bifida when I was ten years old, a defining moment of my life. I have my Bachelors in Finance from Pacific Lutheran University and am working on my...Read More