About Us

What we offer:

Emotional support for everyone affected by Spina Bifida, including meetings at numerous local cluster support groups throughout the state.

The Evergreen newsletter, which details local SBAWS activities, provides news on medical, therapeutic, rehabilitative advances, recreational and legislative issues.

Our website here and our toll-free contact number: 1-888-289-3702

Social events for children, teens and adults to gather, have fun and share their life experiences.

New Parents Packets to help parents learn about Spina Bifida and to help manage their child’s health care needs.

Educational scholarships may be awarded for educational purposes.

Access to national’s Insights magazine and to other current information on Spina Bifida.

A limited equipment fund to assist people with mobility devices, medical supplies and other necessary items not covered by insurance, as well as computer purchases.

Our Directors

Amy Miller, Vice President

I am the mother to 4 beautiful children, Tristram, Ariel, Balin and Kelahna. Kelahna is our youngest and she was born with spina bifida, hydrocephalus, and Arnold Chiari Malformation. Kelahna … Amy Miller, Vice President Read More »

Dave Carl, Director

I am originally from the east coast. I received a bachelors degree in social work from Buffalo State College, in Buffalo, New York in 1999. I have been involved with … Dave Carl, Director Read More »

Rachel Bernhard, Secretary

I grew up in Ames, Iowa where I participated in Spina Bifida Association of Iowa (SBAI) events in support of my niece born with Spina Bifida, Emmie. I graduated from … Rachel Bernhard, Secretary Read More »

Tim Miller, Director

My wife and I have 5 wonderful children. Tristram, Ariel, Balin, Kelahna, and Percival. Kelahana was born with Spina Bifida, Hydrocephalus, and Arnold Chiari Malformation. Kelahna is an amazing little … Tim Miller, Director Read More »

Whitney Stohr, Newsletter Editor

I joined the SBAWS Board of Directors in January 2020. I bring to the board a strong background in communications, outreach and advocacy. I hold a bachelor’s degree in political … Whitney Stohr, Newsletter Editor Read More »

Daniel Bourland, Director

I’m 45yrs old. I was born with Spina Bifida. I am here to help people with Spina Bifida learn to live better lives. I am still trying to figure things … Daniel Bourland, Director Read More »

Chris Pitts, Director

I’m in my 30s and I have Spina Bifida. I have been working with computers for well over a decade now and have more recently started working with webpages. In … Chris Pitts, Director Read More »

Our Volunteers

Tristram Miller

My name is Tristram Miller. My younger sister was born with spina bifida when I was ten years old, a defining moment of my life. I have my Bachelors in … Tristram Miller Read More »