Daniel Bourland, Director
I’m 45yrs old. I was born with Spina Bifida. I am here to help people with Spina Bifida learn to live better lives. I am still trying to figure things out, but now I know I’m not alone.
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Whitney Stohr, Newsletter Editor
I joined the SBAWS Board of Directors in January 2020. I bring to the board a strong background in communications, outreach and advocacy. I hold a bachelor’s degree in political science, a law degree, and master’s degrees in ecology and international and comparative law. Originally from Yakima, Washington, I currently live in Auburn with my…
Dave Carl, Director
I am originally from the east coast. I received a bachelors degree in social work from Buffalo State College, in Buffalo, New York in 1999. I have been involved with Spina Bifida chapters throughout the country. In 1999, I assisted with planning the community events for the Spina Bifida Association of Western New York. From…
Amy Miller, Vice President
I am the mother to 4 beautiful children, Tristram, Ariel, Balin and Kelahna. Kelahna is our youngest and she was born with spina bifida, hydrocephalus, and Arnold Chiari Malformation. Kelahna is such a blessing to our family and we are so proud of her for all that she has overcome. I have a Bachelors degree…
Rachel Bernhard, Secretary
I grew up in Ames, Iowa where I participated in Spina Bifida Association of Iowa (SBAI) events in support of my niece born with Spina Bifida, Emmie. I graduated from Iowa State University in Biological Systems Engineering and Global Resource Systems with a minor in Spanish. I currently work on water and transportation projects as…
Tristram Miller
My name is Tristram Miller. My younger sister was born with spina bifida when I was ten years old, a defining moment of my life. I have my Bachelors in Finance from Pacific Lutheran University and am working on my Masters in Applied Economics from John Hopkins University.
Tim Miller, Director
My wife and I have 5 wonderful children. Tristram, Ariel, Balin, Kelahna, and Percival. Kelahana was born with Spina Bifida, Hydrocephalus, and Arnold Chiari Malformation. Kelahna is an amazing little girl with strength and determination that inspires me every day. I completed my Bachelors degree in Dental Hygiene in 2002 and my doctorate in Dental…